National Thalassemia Committee

The National Thalassemia Committee was established to address the health, social, and public health challenges related to thalassemia and to support the development of a comprehensive national program aimed at improving patients’ quality of life and preventing new cases. The Committee serves as a national coordination platform bringing together government institutions, healthcare providers, academic bodies, civil society organizations, and other relevant stakeholders.

The Committee’s vision focuses on improving the lives of individuals living with thalassemia while contributing to disease prevention. Its mission is to promote effective strategies that ensure access to quality care, early detection, and increased awareness among patients, families, and communities. Key objectives include supporting early screening programs, strengthening service quality, promoting awareness, encouraging research and data collection, and fostering regional and international cooperation.

The Committee includes representatives from various sectors, including the Ministry of Health, Thalassemia Patients Friends Society (TPFS Palestine), academic institutions, NGOs, the Office of the Chief Islamic Justice, and the Ministries of Women’s Affairs, Education, Awqaf and Religious Affairs, and Social Development. A member rotation mechanism is applied to ensure diversity and renewal.

TPFS Palestine plays a central role in representing patients and civil society, contributing community-based perspectives, supporting awareness and prevention efforts, and advocating for patient-centered services. The Committee operates through regular meetings, annual reporting, and performance evaluations, guided by principles of transparency, inclusiveness, gender equality, and ethical and legal compliance, with the option to establish subcommittees or seek international technical support.

For more information, please click on this link: emia.org.cy/